Pain.
Two of the Massachusetts ballot
questions invoked this topic, both from very different perspectives. Both the Death
with Dignity Act and legalization of medical marijuana were hotly debated.
Ultimately, legislation of medical
marijuana was passed in a landslide of 63% yes and 37% no, while the “right to
die”—assisted suicide—question has been conceded by the narrow margin of 51% no
and 49% yes.
| From http://www.boston.com/news/special/politics/2012/general/mass-ballot-question-2-election-results-2012.html. |
| Appropriately green... From http://www.boston.com/news/special/politics/2012/general/mass-ballot-question-3-election-results-2012.html. |
In particular, my very liberal,
small, close-knit hometown began to show some tears.
The discussion seems to have begun
from a message sent to the town listserv regarding Question 2. Sharon linked
her message to a blog post she had written about why she was voting no.
As a disabled person, Sharon had encountered
many additional challenges in the medical world from doctors and nurses that
she felt did not truly want to help her. The most striking was when she tried
to ask for a form to update her emergency contact information before a surgery
and was instead brought a “do not resuscitate” form. She felt that her
humanity, her own desire for life, was undermined by the nurse’s assumption
that her quality of life was not worth fighting for.
Disabilities activists have been a
huge force opposing Question 2. They argued that in states that have adopted
similar laws, many abuses have emerged, either by doctors and the healthcare
system, or weary family members and caregivers.
This worry emerged through the
Wendell listserv discussion. If a suicide pill costs insurance $100, there is a
clear monetary advantage of that option over the thousands of dollars to help
ill or disabled people live out their lives in the most comfortable way.
Supporters of Question 2 asserted
that the proposal accounted for these potential abuses. Only patients with 6
months left to live (as diagnosed by a doctor) would be given this option. Patients
who are unable to make the decision in sound mind would not be eligible. Those
seeking this action must request it twice, orally, at least 15 days apart and
then submit a written request—signed by two witnesses—to be considered. Doctors
must offer alternatives to the patient, such as hospice, and give two days for
the patient to consider these choices. A second doctor must confirm the patient’s
eligibility and sound practice of the process.
In response to Sharon’s appeal
against assisted suicide, Wendellites expounded stories of family members who had
slowly disintegrated from a terminal illness and had been refused the quick
route out and increased pain medication as their discomfort increased. “If my
mother had been my dog, we could have ended her suffering legally. Instead she was a woman whose last wishes for
a dignified end were ignored,” one woman wrote in conclusion.
Nurses, therapists and other active
members of the medical field weighed in, commenting on how they would want the
option for themselves given the suffering they’ve seen.
The elementary school nurse,
however, commented that her mother had passed away from cancer and she had
enough morphine for pain in order to end her life early, had she wished it. The
nurse implied that she would vote no because the quality of day-to-day life was
not so dramatically desperate that her mother wanted out.
Ultimately, Wendell voted 80% to
20% for doctor-assisted suicide—one of the highest pro-votes in the state. The
internal strife clearly did not pull Wendell too far from its strong liberal
tendencies.
Although I voted for the “right to
die,” following this debate made me wonder if my reasons were sound. Is it
right to push legislation through that may include loopholes for abuse? What
about all the misdiagnoses?
My personal view of death was
forever changed when I first truly encountered it. I had been to funerals
before, but the person had already been long gone by the time I saw their body
from a distance. This time was different. I was presented with the stark
contrast of vivacious childhood and a man that was only a shell.
The father of a family friend had
fallen ill with cancer. It was a shock to everyone that knew the hearty,
healthy, athletic grandfather that he was. He underwent chemotherapy and other
treatments and generally held onto his lifestyle, despite being told he was
terminally ill. (UPDATE: correction: "Tim" chose not to receive treatment.)
Suddenly, his life-force began to
drain more quickly. He lost weight, struggled to move around his home, and
ultimately moved in with our family friends to be comforted through the rest of
his journey. There he further lost body functioning, had a very limited ability
to communicate, and lay waiting.
Soon after his hospital bed was
placed in the living room of their house, I went over to spend some time with the
family’s little girl—who was 3—to give her and her parents a break from the added
stress of Tim (name changed).
When I arrived, Sarah (name
changed) energetically hustled me up to her bedroom to play in her cozy space,
thrilled to have a buddy. As we passed through the living room, I caught a
glimpse of a ghost. What once was warm and vivacious Tim, was
instead just a shell of the person he had been before. A chill ran down my spine.
There seemed to be no justice for this to become of the man that had once
encouraged me with ease as I struggled to ski miles in Vermont.
After I left I called my mom and
began the conversation simply: “He’s going to die soon.” The next day we got
the call.
This experience gives me conflicting
information regarding the “right to die” question. He lived longer, and
healthier than doctors had predicted. Ultimately, however, he was reduced to a
shell of a human being until his body was ready to fully let go.
I believe people should not face
situations like Sharon’s where they are encouraged to leave their lives behind.
However, I also believe that should one so desire to hasten the already begun painful
process of death, they should be allowed that option. Hopefully more discussion
will emerge from this highly contested issue, and an appropriate compromise
will evolve.
A few years back I mentioned to you and Sissy that I was a "jumper" if it came to that. You both were quite absolute that you didn't like the thought, however, this article makes me wonder if that has changed, so . . . how would you feel if I decided to end my life because of a terminal illness? Love, Dad
ReplyDeleteAs I said in the post, I am not completely decided on the issue. I feel that every individual situation is different, and for some people having the option available would be a comfort. That said, I would not be thrilled about you taking your own life but if you were dying a slow and painful death I might understand. This is something we can talk about more in person.
ReplyDeleteyes, a good conversation to continue...i have many thoughts on the topic...as you might imagine...and i know that TIm actually never went through any chemo or radiation...just an FYI...he lived fully until he could no longer...and if he had a way to let go earlier, i think he might have
ReplyDeleteThank you for the correction Angel, it certainly affects the story!
ReplyDelete